StemCell Therapy

This past year was tough on us all but living through a pandemic was not the only challenge the Whitler family had to overcome.Joanna Whitler says she was shocked when she found out that 6-month-old baby Luke had a rare genetic medical condition called spinal muscular atrophy also known as SMA.The condition impairs an individuals muscles and motor neurons by not producing enough protein to keep up with the bodys functions.After undergoing multiple treatments, Luke is now taking a new, recently FDA approved medicine called Evrysdi. Which is the first and only take-home medicine to treat FDA. After a short time taking it, his family is already seeing multiple improvements. During Christmas this year, Bodhi, his older brother, asked Santa for a PJ mask doll and for Luke to crawl. And he got a PJ mask doll on Christmas, Luke did not crawl until March, but he is now crawling, Whitler said. The family says they hope the medicine will continue to make Luke improve and that his story will help spread awareness for SMA.

This past year was tough on us all but living through a pandemic was not the only challenge the Whitler family had to overcome.

Joanna Whitler says she was shocked when she found out that 6-month-old baby Luke had a rare genetic medical condition called spinal muscular atrophy also known as SMA.

The condition impairs an individuals muscles and motor neurons by not producing enough protein to keep up with the bodys functions.

After undergoing multiple treatments, Luke is now taking a new, recently FDA approved medicine called Evrysdi. Which is the first and only take-home medicine to treat FDA.

After a short time taking it, his family is already seeing multiple improvements.

During Christmas this year, Bodhi, his older brother, asked Santa for a PJ mask doll and for Luke to crawl. And he got a PJ mask doll on Christmas, Luke did not crawl until March, but he is now crawling, Whitler said.

The family says they hope the medicine will continue to make Luke improve and that his story will help spread awareness for SMA.

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Diagnosed with a rare genetic condition, young Winston Salem boy improves with new medication - WXII12 Winston-Salem

This entry was posted on May 2, 2021 at 1:57 am and is filed under Genetics. You can follow any responses to this entry through the RSS 2.0 feed. Both comments and pings are currently closed. |