StemCell Therapy

By Jane Brody

In letters to The Times, blind readers reacted with heartfelt reassurance and practical guidance to Edward Hoaglands essay, Feeling My Way Into Blindness, published in November.

Stanley F. Wainapel, clinical director of physical medicine and rehabilitation at Montefiore Medical Center in the Bronx, admitted that adapting to vision loss is a major challenge. But he disputed Hoaglands allusion to enforced passivity, pointing out that many advances in technology from screen-reading software for computers to portable devices that read menus or printed letters with a delay of only seconds can keep productivity, creativity and pleasure very much alive for people who can no longer see.

Rabbi Michael Levy, president of Yad HaChazakah, the Jewish Disability Empowerment Center, also acknowledged that transition to a world without sight is far from easy. But he insisted, Blindness does not cut me off from the world. He cited skillful use of a cane, travel devices that tell him where he is and what is around him and periodicals available in real time by telephone among myriad other gadgets that see for him.

Annika Ariel, a blind student double-majoring in English and political science at Amherst College, wrote that her problems are not with her blindness but rather from peoples attitudes that depict the blind as helpless and dependent. She said she travels independently, uses assistive technologies to complete her work as efficiently as others who can see, and excels academically and socially.

Equally inspiring was the response of Mark Riccobono, president of the National Federation of the Blind, who became legally blind at age 5 and lost all useful vision to glaucoma at 14.

I once let blindness make me a passenger in my own life, he wrote. That changed when I encountered a vast network of other blind people who convinced me that blindness did not define me, who taught me nonvisual ways to handle everyday and not-so-everyday tasks, and encouraged me to expect more of myself.

I am now a successful blind man married to a blind woman, living a rich, full life with her and our three children while heading a membership organization that helps tens of thousands of blind people. He met his wife, who was born blind, when they were both students at the University of Wisconsin.

Riccobono, 40, said that he grew up trying to hide his blindness until he met people at the federation who taught him that it was respectable to be blind and that he could do things as effectively as sighted people do.

Ive taught many blind people to use a chain saw, he told me, noting that many activities that we assume require vision really dont.

A screen-reading computer program called Jaws enables Riccobono to read whats on the screen, type and send email using synthesized speech. With the KNFB Reader app on his smartphone, three clicks on the home button turns it into a reading machine that takes pictures of text a menu, label, whatever and reads it out to you, he said.

He credited his federation with having built the best news information source out there the NFB Newsline, with access to hundreds of publications, breaking news, weather that delivers information orally by telephone, on a mobile phone, on a computer via a screen reader or in Braille.

He navigates using a long white cane, which he described as one of the most elegant pieces of technology for blind people. I find things with my cane and plunk the image into a mental map of my environment. He also uses the same GPS system available to sighted people.

Riccobono emphasized the importance of being proactive before a progressive disorder destroys vision entirely. Two of his three young children have the same condition that rendered him blind, and while they can still see, they are learning to read both print and Braille.

He advised me to tell my three friends who have varying stages of age-related macular degeneration to start now to learn to use the tools they will need when they can no longer see clearly. It will make their adjustment that much easier, he said.

The American Council for the Blind has an online list of all manner of products that can smooth the way for people with limited or no vision, including information on where to buy them. Products range from voice-activated television remotes and talking calculators to sewing and kitchen aids. There are also products for people with both vision and hearing loss.

Equally important is for sighted individuals to know how to interact effectively with people who are blind or visually impaired. First and foremost, be sure to identify yourself by name (and association, if your name may not immediately ring a bell). Dont assume the person can recognize you by your voice.

Dont channel your remarks through a third person, and speak naturally. Dont restrict your use of words like see or look when they are a logical component of a conversation. And dont raise your voice, unless the person who cant see also cant hear well.

Dont assume. Always ask first if the person needs help, whether that involves crossing a street, finding a building or carrying a package. When providing directions, be specific, using words like on the left or on the next corner.

Continue reading here:
Brody: After blindness descends, finding the light - Sarasota Herald-Tribune

This entry was posted on March 7, 2017 at 6:43 pm and is filed under Blindness. You can follow any responses to this entry through the RSS 2.0 feed. Both comments and pings are currently closed. |