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Archive for the ‘Arthritis’ Category

New spin out focuses on arthritis data-sharing – Lab News

Saturday, March 11th, 2017

Mancunian researchers have created a new social enterprise to develop new tests and treatments for a range of musculoskeletal conditions such as rheumatoid arthritis.

Through Inspiral Biomedical Limited, these scientists will be making biological samples and data collected over the past two decades at the University of Manchester, available to other academic and industry researchers.

Inspiral Biomedical Ltd Chairperson, Professor Anne Barton, said: We know that our bank of biological samples and data holds an unprecedented opportunity to gain a better understanding of these conditions and how best to treat those individuals affected.

Musculoskeletal (MSK) conditions can greatly affect peoples quality of life. More than 20% of the UKs population consult with a GP about MSK complaints and this number will rise as the population ages.

Professor Barton said: In Manchester, we are already utilising this data, but by making it available to other academic and industry researchers across the world will be able to bring new tests and treatments to patients more quickly.

Inspiral Biomedical Ltd is composed of Professor Wendy Thomson and Dr Steve Eyre, who in addition to Professor Barton. All three are from the Arthritis Research UK Centre for Genetics and Genomics.

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Arthritis afflicts about 1 in 4 adults in the US, CDC report finds – Washington Post

Friday, March 10th, 2017

By Jia Naqvi By Jia Naqvi March 7

About one in four adults in the United States suffers from arthritis, according to a new Centers for Disease Control and Prevention Vital Signs report published Tuesday.

Of the 54 million adults in the United States who have this debilitating condition, not all are elderly. About 60 percent of those with arthritiswere between the ages of 18 and 64, that is, working age. Activity limitations from arthritis increased by 20 percent since2002, the report found. Simple, everyday tasks, such as walking or lifting bags, are challengingfor 24 million peopleaffected by the conditionin the United States.

Even though movement is painful and difficult for people with arthritis, the report suggests that increased physical activity can mitigate arthritis symptoms by 40 percent. Despite the proven health benefits of physical activity for arthritis symptoms, about 1 in 3adults with arthritis in the United States self-reports being physically inactive.

Arthritisis typically treated with non-steroidal anti-inflammatory drugs and analgesics, among other types of medication, including opioids. However, the CDC Guideline for Prescribing Opioids for Chronic Pain recommends use of other strategies known to have less risk associated with them, such as exercise therapy.

Other coping strategies for arthritis symptoms, such asinterventions to help people understand and manage the disorder, can help boost people's confidence when dealing with the condition and reduce pain, stress, depression and fatigue by 10 to 20 percent, the report found. But only 1 in 10 adults takes part in such education programs in the United States. They are more likely to participate in these programs if a health-care provider recommends them, according to the report.

The report found that prevalence of arthritis among adults with preexisting conditions, such as heart disease and obesity, is high. About half of all the adults diagnosed with heart disease had arthritis, and nearly one-third of adults who were obese had arthritis. These conditions in combination with arthritis can be difficult to manage, according to the report.

The researchers analyzed data collected between 2013 and 2015 from the National Health Interview Survey, which is a nationally representative annual in-person interview survey of the health status and behaviors of the non-institutionalized civilian U.S. adult population.

The study has somelimitations. Among other things, people who responded to the survey self-reported that a doctor diagnosed them with arthritis, which was not confirmed by a health-care professional. Social desirability might have also biased peoples responses about their level of physical activity in daily life.

Because so few people participate in education programs for arthritis self-management strategies or are physically active, the CDC hopes to conduct future research to convince people tobecome more activeand learn more about self-management strategies for arthritis, saidCharles Helmick,a senior medical epidemiologist with the Arthritis Program at the National Center for Chronic Disease Prevention and Health Promotion, part of theCDC.

"Over the course of the last 15 or 20 years, the burden of arthritis has only been growing," said Rowland Chang, a professor at Northwestern University's Feinberg School of Medicine, a rheumatologist at the Rehabilitation Institute of Chicago and chair of the Arthritis Foundation's Board of Directors.

Like the CDC, the Arthritis Foundation hopes to improve the lives of people with arthritis.

"The foundation really believes we need to accelerate research into the pharmaceutical side to find better treatments for osteoarthritis because if we don't, we won't be able to bend the cost curve in this country," Chang said.

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I thought I was too young for arthritis. I was wrong.

Gout, a form of arthritis, is no longer limited to the well-to-do

Mental illness and heart disease are often found in the same patients

Women with diabetes are especially prone to developing heart disease

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Arthritis afflicts about 1 in 4 adults in the US, CDC report finds - Washington Post

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Rocker Dan Reynolds ‘grateful’ for struggles of arthritis condition – Music News

Friday, March 10th, 2017

Imagine Dragons frontman Dan Reynolds has drawn strength from his debilitating battle with chronic arthritis pain and used it as inspiration for the band's new material.

The Radioactive singer spoke candidly to People magazine in November (16) about his struggles with ankylosing spondylitis (AS), a type of arthritis which causes long-term inflammation of joints in the spine.

Dan admitted the illness had plagued him during the group's rise to fame, and really left him in a "bad place", especially as the rockers worked on their 2015 album Smoke + Mirrors.

"Right at the beginning of Smoke + Mirrors was really when A.S. was rearing it's head in a big way," he recalls in a new interview with People. "It was the beginning of the disease in a lot of ways for me and learning to manage it. So physically I was in a quite a lot of pain, and mentally I was in a very bad place as well."

Dan has since gotten to grips with the condition, which now allows him to better manage his symptoms, and as a result, he has been enjoying "a very healthy year" after much "physical and mental work".

Fighting through the health struggle has made him a more positive person, and now he's able to recognise it has only made him stronger.

"I'm grateful for it," he says. "Looking back in this last year from a place of health, you're able to have greater perspective and I've had more perspective to see that a lot of the great things in my life are due to struggle.

"A lot of my greatest strengths are due to my greatest weaknesses or flaws or physical ailments. It brought me discipline, gratitude and compassion."

Dan channelled his emotions about his illness into the band's new single Believer, making it a really personal track to perform.

"The song is about how pain made me a believer," he shares. "It's made me a believer in myself, it's made me a believer in my art and work. I wouldn't have my art if it wasn't for pain. It takes somewhat of a healthy place to appreciate it because when you're in the midst of it you don't appreciate it. You're just upset."

Despite Dan's health turnaround, he insists there are still days when he struggles with severe pain, but he is urging others suffering from similar ailments to keep pushing through.

"With depression or A.S., it's not just a pit for the rest of your life or this downward spiral. It's the beginning of something that is going to cause you to have to grow to make changes," he concludes. "While it can seem bleak right when you're diagnosed, there are management plans so that's why it's so important for it not to remain a hidden disease and that awareness is raised."

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New procedure helps people dealing with severe arthritis – WNDU-TV

Friday, March 10th, 2017

For people with severe arthritis in their toe joints, surgery has been one of the only options to relieve chronic pain, and fusion is a last resort.

Logan Snyder was a standout high school athlete, racking up awards and landing a college softball scholarship, but pain in her toes became unbearable.

"Anytime that I would put weight on my toes, when they would bend back is when it would hurt, which is pretty much constantly," said Snyder.

Doctors performed multiple surgeries to relieve pressure from whats called Hallux Rigidis, a rigid big toe.

"We see it a lot in people who are on the front of their toes, whether its dance, whether its gymnastics, whether its running," said Dr. Victor Prisk, an orthopedic surgeon at Allegheny Health Network.

Foot and ankle surgeon victor prisk knew that fusing the joint would eliminate the pain, but would also limit motion. Instead he recommended a newly-approved flexible toe joint implant called cartiva.

"Its made up of a material called polyvinyl alcohol. Its very similar to the material that would be used to make contact lenses," said Dr. Prisk.

Doctors open up the top of the toe exposing the head of the joint, and then they insert the implant.

"It almost acts like a bumper in your joint. Just like your cartilage would," said Dr. Prisk.

Logan felt the difference as soon as she started moving her big toe.

The change is that I can feel how far back it can get. Its crazy compared to other surgeries," she said.

Last year pain forced Logan to quit softball, but now shes working to get back in shape without pain.

"Thats what Im aiming for, and I really hope to get there," said Logan.

The FDA approved Cartiva last July. Doctor Prisk says its recommended for patients who do not have gout and dont have severe toe deformities.

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New procedure helps people dealing with severe arthritis - WNDU-TV

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Natural remedies available for nagging arthritis pain – The News (subscription)

Friday, March 10th, 2017

Are there natural remedies for arthritis? exercises that could help? my pain is in the upper arms and shoulders.

Dear Reader: Osteoarthritis, the kind that youre describing, is caused by degeneration of the cartilage within a joint. Without the cartilage, one bone rubs upon the other, leading to pain and degeneration of the bone.

Doctors typically recommend nonsteroidal anti-inflammatory drugs (NSAIDs), such as ibuprofen, naproxen and aspirin; acetaminophen; and, more rarely, opiates. But NSAIDs can increase the risk of stomach ulcers and kidney problems when used chronically; acetaminophen at high doses can cause liver problems when used chronically; and opiate medications can lead to addiction. So I can understand your desire to look for an alternative for the pain.

The supplements chondroitin sulfate and glucosamine have been used for osteoarthritis for years. Chondroitin is one of the building blocks of cartilage in our body, so many people naturally believe that taking chondroitin can decrease the pain of arthritis.

A 2015 review of 43 randomized trials compared the use of chondroitin alone or in combination with glucosamine against the use of a placebo. Most of these studies looked at treatment for arthritis of the knees, with some looking at arthritis of the hips and hands. The studies measured pain on a 100-point scale. The use of chondroitin was found to be beneficial, whether with or without glucosamine, showing a small 8-point difference in pain compared with placebo. It didnt ease the stiffness and lack of mobility associated with arthritis, however.

In another study, a randomized trial of 606 patients with pain from osteoarthritis of the knee compared the use of glucosamine with chondroitin against the anti-inflammatory drug celecoxib (Celebrex). After six months, both groups found a greater than 50 percent reduction in both pain and joint swelling. What was interesting about the study was that it took a while for the glucosamine/chondroitin to work. At one to four months, Celebrex was much better at improving pain, but at six months it was no different than the glucosamine/chondroitin combination. So with the use of glucosamine and chondroitin, it is important to be patient.

The supplements MSM (methylsulfonylmethane) and DMSO (dimethyl sulfoxide) are anti-inflammatory agents that have been studied in arthritis of the knees without evidence of benefit, but its possible they could decrease pain in the joints of the hands. Arnica montana is a plant-based therapy that has some potential in topical use for pain relief, with one study finding a slight benefit for arthritis of the hands. Topical use of capsaicin cream, made from chili peppers, has shown potential as well, specifically for arthritis of the knee. Other natural remedies and supplements, such as fish oil, are touted for arthritis, but their use has not been well studied.

As for exercises, I would recommend physical therapy to increase your range of motion for your shoulder and to help increase your muscular strength. Yoga, Pilates and tai chi can also be beneficial, potentially increasing your range of motion without undue stress on your already aching joints. Over time, you may well see a difference in your ability to function with less pain.

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Natural remedies available for nagging arthritis pain - The News (subscription)

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Pain in YOUR bones? Don’t mistake cancer symptoms for common arthritis or gout – Express.co.uk

Friday, March 10th, 2017

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Bone cancer is a rare type of cancer - it affects just over 500 people every year.

Most cases of bone cancer develop in the long bones of the legs or upper arms.

The most common symptoms of the disease is a persistent pain which gets worse over time, and like arthritis can get worse at night.

NHS Choices said: The pain can sometimes be wrongly mistaken for arthritis in adults and growing pains in children and teenagers.

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We know that too often people ignore pain or swelling in their joints.

Alan Silman

Other symptoms of bone cancer can include swelling and redness over a bone which can make movement challenging.

This could also be mistaken for gout, an uncomfortable, inflammatory condition that occurs when needle-like crystals of uric acid form within certain joints or soft tissues.

Gout - which is a form of arthritis - can be associated with a rich diet which can be altered to avoid the condition.

Other symptoms of bones cancer include a lump over a bone, or a weak bone which fracture more easily than normal.

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Getty Images

1 of 10

Leukaemia 31% - This cancer of the blood is the most common type of childhood cancer

We know that too often people ignore pain or swelling in their joints.

Alan Silman

This could be mistaken for osteoporosis - a condition which weakens bones and makes them more fragile and likely to break,

The condition affects more than three million people in the UK.

There are three main types of bone cancer including osteosarcoma which most commonly affect children and young adults under 20 and Ewing sarcoma and chondrosarcoma.

The Bone Cancer Research Trust (BCRT) has previously called for faster x-ray referrals for children or young adults who visit their doctor with painful bones or swollen joints, after a report by the National Cancer Intelligence Network (NCIN) revealed that survival rates for primary bone cancer have remained unchanged.

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Experts have said X-rays can have a huge impact on sufferers chances of survival, adding that there is a need to improve GPs awareness of primary bones cancer.

Professor Alan Silman, former medical director of Arthritis Research UK has previously spoken out about the symptoms of bone cancer.

"We know that too often people ignore pain or swelling in their joints.

"Often these symptoms are the early signs of rheumatoid and osteoarthritis.

"Very rarely a localised pain and swelling without any other obvious cause can be warning signs of bone cancer."

Macmillan Cancer Support said another signs of the disease could be difficulty moving a joint.

It said: If the cancer is near a joint, this can make it more difficult to move the joint.

It can affect the movement of the whole limb. If the affected bone is in the leg, it may cause a limp. If the tumour is in the spine, it may press on nerves, causing weakness or numbness and tingling in the limbs.

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Pain in YOUR bones? Don't mistake cancer symptoms for common arthritis or gout - Express.co.uk

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Arthritis New Zealand South Canterbury office to close – Timaru Herald

Friday, March 10th, 2017

ESTHER ASHBY-COVENTRY

Last updated15:00, March 10 2017

123RF

Arthritis sufferers in South Canterbury will only be able to contact Arthritis New Zealand via online or telephone from the end of March when its office in Timaru closes.

Another not for profit organisation is closing its office doors in Timaru, this time Arthritis New Zealand South Canterbury will shut at the end of March so funds saved can be redirected.

Diabetes South Canterbury closed its Timaru office at the end of 2016.

March 31 will be the final day the Arthritis New Zealand South Canterbury office located at Community House will be open.

Nationally there are 620,000 adults suffering from arthritis and 1000 children. The condition causes joint pain, swelling, stiffness and decreased mobility. There are more than 100 types of arthritis.

Arthritis NZ chief executive Sandra Kirby said the organisation had signalled as early as 2011 that it would take up the the three office model, Auckland, Wellington and Christchurch, closing its six regional offices.

"We did our best to retain experienced staff for as long as we could. Some (regional offices) closed before Christmas and the last local office will close in June."

Kirby said eight, part time staff members, had taken redundancy and in some cases that was voluntary. Thirty staff members would be left.

The closures would save about $300,000 annually which would be spent on more awareness and advocacy work. The board's decision for the redirection strategy was based on a review, consultations and feedback "on where energy needs to go".

"We are incredibly conscious and fortunate the community supports us. We are a charity and need to use the money wisely and be more cost effecitve."

Arthritis NZ needs $3.5million a year to function averaging $10,000 a day. Last financial year it ended with a deficit of $536,000 while the year before that had a surplus of $580,000.

She said the changes were a "strategic redirection" of funds with everything the offices offered available online and via telephone, except face-to-face interactions. In 2016 the organisation received 10,000 phone calls.

"We offer comprehensive support for people to self manage their chronic condition."

The organisation had dropped the physical support groups it ran but would link callers to other appropriate services already in their communities.

"A lot of people of all ages use online (services)."

Arthritis NZ's 0800 phone line was available during business hours with no plans to expand the service in the immediate future, Kirby said.

South Canterbury arthritis educator Vanessa Stone could not be contacted for comment.

-Stuff

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Arthritis New Zealand South Canterbury office to close - Timaru Herald

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Arthritis Cases Surge – AARP News

Thursday, March 9th, 2017

Not only has the total number of diagnosed cases risen, but those who say arthritis has severely limited their activities has jumped 20 percent since 2002, to 24 million.

Arthritis is a painful, inflammatory condition of the joints that makes simple tasks like holding a cup, walking to a car or lifting a bag of groceries virtually impossible. It includes osteoarthritis, the most common form, as well as rheumatoid arthritis, gout, lupus and fibromyalgia.

The CDCs analysis of recent federal health data also found that women are more likely to have arthritis than men, and so are those who are obese or who have heart disease or diabetes. About 49 percent of people with heart disease and 47 percent of those with diabetes have been diagnosed with arthritis, along with about a third of adults who are obese.

Despite the pain and stiffness that arthritis causes, the report suggests that many people could reduce these symptoms by 40 percent with regular physical activity, which helps keep joints from stiffening. Currently, 1 in 3 adults with arthritis report being inactive.

This phrase says it all: Rest is rust, motion is lotion, Schuchat said. Even though those with arthritis may be reluctant to try exercise because of their painful joints, studies have shown that being physically active helps lubricate the joints, easing pain and improving movement.

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Arthritis Cases Surge - AARP News

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Ask the Drs.: Natural remedies for arthritis pain – The Salinas Californian

Thursday, March 9th, 2017

ASK THE DOCTORS by Robert Ashley, M.D. For The Salinas Californian 9:01 p.m. PT March 8, 2017

Dr. Robert Ashley MD(Photo: Provided)

Dear Doctor: Are there natural remedies for arthritis? Exercises that could help? My pain is in the upper arms and shoulders.

Dear Reader: Osteoarthritis, the kind that youre describing, is caused by degeneration of the cartilage within a joint. Without the cartilage, one bone rubs upon the other, leading to pain and degeneration of the bone.

Doctors typically recommend nonsteroidal anti-inflammatory drugs (NSAIDs), such as ibuprofen, naproxen and aspirin; acetaminophen; and, more rarely, opiates. But NSAIDs can increase the risk of stomach ulcers and kidney problems when used chronically; acetaminophen at high doses can cause liver problems when used chronically; and opiate medications can lead to addiction. So I can understand your desire to look for an alternative for the pain.

The supplements chondroitin sulfate and glucosamine have been used for osteoarthritis for years. Chondroitin is one of the building blocks of cartilage in our body, so many people naturally believe that taking chondroitin can decrease the pain of arthritis.

A 2015 review of 43 randomized trials compared the use of chondroitin alone or in combination with glucosamine against the use of a placebo. Most of these studies looked at treatment for arthritis of the knees, with some looking at arthritis of the hips and hands. The studies measured pain on a 100-point scale. The use of chondroitin was found to be beneficial, whether with or without glucosamine, showing a small 8-point difference in pain compared with placebo. It didnt ease the stiffness and lack of mobility associated with arthritis, however.

In another study, a randomized trial of 606 patients with pain from osteoarthritis of the knee compared the use of glucosamine with chondroitin against the anti-inflammatory drug celecoxib (Celebrex). After six months, both groups found a greater than 50 percent reduction in both pain and joint swelling. What was interesting about the study was that it took a while for the glucosamine/chondroitin to work. At one to four months, Celebrex was much better at improving pain, but at six months it was no different than the glucosamine/chondroitin combination. So with the use of glucosamine and chondroitin, it is important to be patient.

The supplements MSM (methylsulfonylmethane) and DMSO (dimethyl sulfoxide) are anti-inflammatory agents that have been studied in arthritis of the knees without evidence of benefit, but its possible they could decrease pain in the joints of the hands. Arnica montana is a plant-based therapy that has some potential in topical use for pain relief, with one study finding a slight benefit for arthritis of the hands. Topical use of capsaicin cream, made from chili peppers, has shown potential as well, specifically for arthritis of the knee. Other natural remedies and supplements, such as fish oil, are touted for arthritis, but their use has not been well studied.

As for exercises, I would recommend physical therapy to increase your range of motion for your shoulder and to help increase your muscular strength. Yoga, Pilates and tai chi can also be beneficial, potentially increasing your range of motion without undue stress on your already aching joints. Over time, you may well see a difference in your ability to function with less pain.

Robert Ashley, M.D., is an internist and assistant professor of medicine at the University of California, Los Angeles.

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Diagnosed with arthritis in middle school, CU’s Jesse Knori managed to become a successful athlete – The Denver Post

Thursday, March 9th, 2017

BOULDER For someone who spent much of her childhood unable to see her kneecaps because of joint swelling caused by rheumatoid arthritis, Jesse Knori has enjoyed a remarkable career as an athlete.

Knori, a senior nordic racer for the Colorado ski team, will retire after racing at the NCAA championships this week in New Hampshire because it wouldnt be good for her damaged joints to continue training at the levels her sport demands. She will be missed, not only because of her talent but also for the inspiration she provided to teammates for her ability to cope with pain and family tragedy.

Sometimes after a race she has to be carried from the finish line because she loses feeling in her legs.

I can feel that somethings wrong, but theres no spatial awareness of where my feet are, Knori said. Thankfully I have a really strong team. They can carry me.

Despite her arthritis she was an All-American last year, she won a race at the Alaska Anchorage Invitational this season, and she represented her country at the Under-23 nordic world championships last month, finishing 15th in a sprint race.

Her career has been one of overcoming obstacles. Knori was unable to compete her freshman season because of a long bout with whooping cough. Then she lost her father in a horseback-riding accident.

Without complaining at all, she has such dedication and perseverance, said CU nordic coach Bruce Cranmer. Knowing how much shes had to deal with, and been so positive, its an inspiration for everybody on the team.

The first signs of her disease showed up in the sixth and seventh grades. Knori started noticing she couldnt turn her neck without getting an electric pain in her spine. Then her knees began to swell.

I didnt know what my kneecaps looked like until I was probably 18, when I started seeing them again, Knori said. They were like giant grapefruits.

Knori had togive up volleyball and figure skating, which she loved. She could swim, and was on her high school team, but she longed to be outdoors. Growing up on a ranch in Jackson, Wyo., there was a lot out there to miss, so she gave cross country skiing a try and fell in love with it. It may not have been good for her joints, but it was great for her mental health.

When youre happier, your body tends to be healthier, Knori said, and I was having a great time.

She was good at it, too. After moving to Sun Valley, Idaho, she won a state high school title. She made it to junior nationals three times before enrolling at CU in 2013. There she had another major setback.

An injection that was supposed to control inflammation in her joints crashed her immune system, and within days she had whooping cough that lasted seven months. She kept going to class, but professors asked if was prudent for her to be out in public.

I would faint and puke just from coughing, she recalled. Every four weeks or so, I would have a good day. I think I trained like eight hours in six months. I just had to keep my mind positive and get ready for it to be over.

She did not consider quitting.

To me it was just, stuff happens and you get on with it, Knori said. I just loved the sport.

She joked that coughing is a good workout for abdominal muscles.But the blow that came in June after her freshman year wasnt something she could laugh off. One evening back in Jackson, her father went out for a horseback ride and his horse returned without him. Search-and-rescue was summoned.

Helen H. Richardson, The Denver Post

They found him, he was brain dead on scene, Knori said. They transported him to an intensive care hospital and he passed away 12 hours after that. He hit his head on a rock.

At first, Knori wasnt sure if she could return to school, but at home there were constant reminders of her father. She went back to Boulder, grief-stricken.

I would break down (while) training, especially when we were doing really hard workouts, she said. Your mind is always challenging you when youre pushing really hard. When I would get into the red zone of training, I would break down in tears.

College ski teams spend enormous amounts of time together. There are three-hour roller-ski workouts in the summer and long van rides during the season seven hours to the Utah Invitational, 10 hours to Montana State. Her teammates were there for her.

It helped me so much more than I think any of them know, Knori said.

The camaraderie of nordic athletes goes beyond team.

When you cross the finish line, you see everyone from different teams congratulating each other and hugging each other because you all know youre doing the most masochistic sport out there, Knori said. You have to admire each and every person for doing that to themselves and loving it. Its not like they hate it. They love every second of it.

Knori is going to miss it. Being a casual recreational skier will have to suffice.

Its not smart for me, body-wise, to push it and see what I can do, Knori said. I just think I need to take care of my body a little bit more than I have for the past four years. I think Ive accomplished with skiing what I want. I still love it every day. Ill always do it. Ill be the crazy person roller skiing at age 50 because I think roller skiing is one of the more fun things anyone can do.

She wants to coach at the youth or high school level, and if one of her athletes has to go through something really difficult, she can share what battling arthritis has taught her: How she kept a positive attitude, because when she was diagnosed, she saw kids who were worse off, kids she knew would be bedridden for the rest of their lives.

Even if you are having a bad situation, Knori said, thinking positively about everything else you have in your life brings you to better places mentally than it would if you let it hold you down.

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Diagnosed with arthritis in middle school, CU's Jesse Knori managed to become a successful athlete - The Denver Post

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Rosemount girl is Arthritis Foundation’s 2017 Youth Honoree – Rosemount Town Pages

Thursday, March 9th, 2017

The Walk to Cure Juvenile Arthritis raises funds and awareness for juvenile arthritis, which, according to the Arthritis Foundation, affects more children than juvenile diabetes, cystic fibrosis and muscular dystrophy combined. Nearly 300,000 American children suffer from the autoimmune disorder, which causes inflammation of the joints, swelling, pain, stiffness and loss of motion.

In Kenley's case, it was impeding her ability to learn to walk.

"She was 14 months old and she was really tentative with her walking," her mother, Dongi Huss, said. "She would walk and fall and cry, take a couple more steps, then fall and cry again. I knew there was something wrong, but I had no idea what was going on."

Kenley was officially diagnosed with oligoarticular juvenile idiopathic arthritis at 16 months old. She began receiving steroid injections in her joints to help prevent any long-term damage while doctors tried to determine which medication would work best for her. Now 7 years old, Kenley has been on medication almost continuously since that time.

Huss said the drugs have helped keep her daughter's symptoms under control.

"It's not something you want your kids to be on long-term, but it helps," she said. "You have to try to find that balance between medication and quality of life long-term."

Huss said Kenley's symptoms are not severe enough that she requires more invasive IV treatments like some kids so. Other than having to visit a rheumatologuist and an eye doctor and have her blood drawn several times a year, she leads a fairly normal life. She is even active in baton twirling and dance.

"She's like any other kid," Huss said." As long as her medication is working, she does everything her friends do."

On Friday, Kenley conducted a live interview on WCCO "This Morning" to help provide awareness for her condition. And Saturday she got to share her story with 2,000 people at the The Walk to Cure Juvenile Arthritis kickoff celebration at the Mall of America.

"She read her speech and she was so amazing, and then I cried" Huss said.

After the pre-event festivities, which included face painting, hair painting and entertainment, Kenley's team of supporters walked several laps around the Mall of America to help raise awareness. This year, Kenley's Krew raised more than $12,500 to help fund research on juvenile arthritis in hopes of identifying better treatments and a cure.

"We had over 75 people walking with us, cheering us on, and clapping and screaming and jumping up and down," Huss said. "It was an amazing experience. It really was."

Kenley said she thought it was important to make more people aware of her juvenile arthritis. She also enjoyed her little brush with fame.

"I really liked being on TV so my friends could watch," she said.

Huss said the Arthritis Foundation has done an amazing job of advocating for kids with juvenile arthritis, and she was grateful for the opportunity to connect with others who are dealing with the same condition.

"For us, it's just so important to raise awareness because we had no idea this even existed until we got Kenley's diagnosis," Huss said. "There are almost 300,000 kids who have this, and we had no idea. It's important for people to know there are a lot of super tough kids out there that are battling and dealing with this. The more I get the word out, the more available we are to other families that might be dealing with this, and they will know they are not alone."

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Obesity sparking a RISE in agonising arthritis among younger people – Express.co.uk

Thursday, March 9th, 2017

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A study of four generations born between the 1930s and 1960s found rates of the agonising condition soared in each succeeding one.

The number of cases increased over time, especially among those who were carrying too many pounds. Women were most at risk.

In the UK, 10 million people now suffer from arthritis with 8.5 million of these with the most common form osteoarthritis - which is caused by wear and tear on joints where the cartilage is worn away.

Now, in the first study of its kind, researchers found more recent generations are most at risk, with increasing BMI (body mass index) to blame.

Scientists looked at 8,817 participants from the Canadian longitudinal National Population health Survey 1994 -2011 who were split into four birth groups

These included World War II (1935-44), older and younger baby boomers from the surge of births that followed (1945-54 and 1955-64) and Generation X (1965-74), born after the baby boomers.

The findings published in Arthritis Care & Research show members of Generation X are most likely to suffer the sore, creaky joints of arthritis, the ultimate badge of ageing.

Lead author Dr Elizabeth Badley, of the University of Toronto, explained arthritis rates rose over the period, especially in obese individuals.

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Within each birth cohort the proportion reporting arthritis increased

Dr Elizabeth Badley

She said: "Overall increases due to obesity were partially offset by concurrent increases in education, income and smoking cessation."

But she believes the impact of BMI on arthritis is "likely an underestimate."

Dr Badley warned: "Cohort differences focus attention on the need to target arthritis management education to young and middle aged adults."

There were 1,598 participants in the World War II cohort, 2,208 and 2,781 in the older and younger baby boomer respectively, and 2,230 in the 'Gen Xers'.

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Dr Badley said: "Within each birth cohort the proportion reporting arthritis increased over the 18 years from 1994/95 to 2010/11."

She added: "Obesity and sedentary lifestyle also increased substantially across all cohorts over time."

Women were more likely to report arthritis than men.

Higher education and income protected against it, with BMI and smoking the significant behavioural factors that caused it.

Dr Badley said: "The odds of reporting arthritis increased with increasing levels of BMI. For example, those who were in the severe obese category were 2.5 times more likely to report arthritis than those of normal weight.

"Furthermore, non smokers were less likely to report arthritis than current smokers."

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She added that increases in BMI have to some extent been offset by the positive impact of improvements in education and income levels and decreases in smoking rates.

She said few studies have considered the possibility of people born at different times having greater prevalence of arthritis.

Dr Badley said: "Our overall finding of a cohort effect so that at the same age individuals in recent cohorts are more likely to report arthritis than those of the same age several years earlier would imply an increase in the prevalence of arthritis.

"Although this population-based study asked about arthritis in general, it is likely that the overall findings reflect osteoarthritis given the overwhelmingly higher prevalence of this type of arthritis.

"Our results are compatible with studies showing an increasing incidence in osteoarthritis over time based on data on visits to doctors."

Later parenthood may also be a factor in the higher rates of arthritis in recent generations.

Dr Badley said: "The age at which women have their children has increased dramatically resulting in a greater age difference between parents and children in more recent cohorts.

"Older parents are more likely to have arthritis, potentially increasing awareness in their children."

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There has also been an increase in leisure time physical activity over time in Canada.

The higher prevalence of arthritis in more recent cohorts could be related to exercise increasing awareness of joint symptoms, or injury bringing on osteoarthritis.

Added Dr Badley: "Not only was the cohort effect of higher arthritis prevalence more marked in those who were obese compared to those of normal weight, in all cohorts the age of onset of arthritis in obese individuals was earlier.

"This has implications for the targeting of public health messages for the control and management of arthritis."

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Natrual remedies available for nagging arthritis pain – Beatrice Daily Sun

Tuesday, March 7th, 2017

Dear Doctor: Are there natural remedies for arthritis? Exercises that could help? My pain is in the upper arms and shoulders.

Dear Reader: Osteoarthritis, the kind that you're describing, is caused by degeneration of the cartilage within a joint. Without the cartilage, one bone rubs upon the other, leading to pain and degeneration of the bone.

Doctors typically recommend nonsteroidal anti-inflammatory drugs (NSAIDs), such as ibuprofen, naproxen and aspirin; acetaminophen; and, more rarely, opiates. But NSAIDs can increase the risk of stomach ulcers and kidney problems when used chronically; acetaminophen at high doses can cause liver problems when used chronically; and opiate medications can lead to addiction. So I can understand your desire to look for an alternative for the pain.

The supplements chondroitin sulfate and glucosamine have been used for osteoarthritis for years. Chondroitin is one of the building blocks of cartilage in our body, so many people naturally believe that taking chondroitin can decrease the pain of arthritis.

A 2015 review of 43 randomized trials compared the use of chondroitin alone or in combination with glucosamine against the use of a placebo. Most of these studies looked at treatment for arthritis of the knees, with some looking at arthritis of the hips and hands. The studies measured pain on a 100-point scale. The use of chondroitin was found to be beneficial, whether with or without glucosamine, showing a small 8-point difference in pain compared with placebo. It didn't ease the stiffness and lack of mobility associated with arthritis, however.

In another study, a randomized trial of 606 patients with pain from osteoarthritis of the knee compared the use of glucosamine with chondroitin against the anti-inflammatory drug celecoxib (Celebrex). After six months, both groups found a greater than 50 percent reduction in both pain and joint swelling. What was interesting about the study was that it took a while for the glucosamine/chondroitin to work. At one to four months, Celebrex was much better at improving pain, but at six months it was no different than the glucosamine/chondroitin combination. So with the use of glucosamine and chondroitin, it is important to be patient.

The supplements MSM (methylsulfonylmethane) and DMSO (dimethyl sulfoxide) are anti-inflammatory agents that have been studied in arthritis of the knees without evidence of benefit, but it's possible they could decrease pain in the joints of the hands. Arnica montana is a plant-based therapy that has some potential in topical use for pain relief, with one study finding a slight benefit for arthritis of the hands. Topical use of capsaicin cream, made from chili peppers, has shown potential as well, specifically for arthritis of the knee. Other natural remedies and supplements, such as fish oil, are touted for arthritis, but their use has not been well studied.

As for exercises, I would recommend physical therapy to increase your range of motion for your shoulder and to help increase your muscular strength. Yoga, Pilates and tai chi can also be beneficial, potentially increasing your range of motion without undue stress on your already aching joints. Over time, you may well see a difference in your ability to function with less pain.

Robert Ashley, M.D., is an internist and assistant professor of medicine at the University of California, Los Angeles.

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‘This is not your mother’s arthritis’: Most cases found in younger Americans – CNN

Tuesday, March 7th, 2017

That number is "alarmingly high," according to a report released Tuesday.

About 54.4 million American adults have had a doctor diagnose them with painful joint inflammation and stiffness, according to the new Centers for Disease Control and Prevention Vital Signs Report. That breaks down to about one in four adults in the nation.

The number is probably an under-count since it does not include those who have had to go into nursing home care because of it. It also does not include people who may be suffering but haven't gone to the doctor.

"This is not your mother's arthritis," Acting CDC Director Anne Schuchat said. "Contrary to popular opinion, it is not an old person's disease."

Aging baby boomers aren't the only ones who have it. The majority of current cases of arthritis -- 32.2 million -- are in people under age 65. Women have it more than men, and the number is particularly acute for diabetics, heart patients and those struggling with obesity. About 49.3% of people with heart disease have arthritis, 47.1% of diabetics and 30.6% of people who are obese.

The new numbers come from self-reported data collected between 2013 and 2015.

The research also found that 23.7 million Americans with arthritis have had to limit their activities because of the pain. Some say they can't bend or stoop. Others report having difficulty kneeling or struggle with holding a cup; others find it tough to walk even three blocks.

Many people with arthritis take some kind of pain medication, including opioids, but there are safer and cheaper options.

"We do have to be careful about these exercise recommendations, though," said Guy Eakin, senior vice president of scientific strategy with the Arthritis Foundation. "We have more than 100 types of arthritis." That means some people can't exercise their way out of the pain, but many can and shouldn't be afraid to bike, walk or swim.

Eakin said more research into how to fight arthritis is needed. He, McDaniel and 400 other advocates went on Capitol Hill on Tuesday to talk to Congress about how to better invest in the disease.

Today, the condition costs the country $81 billion, and that number will probably go up. By 2040, scientists project, arthritis will affect 78.4 million people.

"The cost of care is dramatically outpacing what the country is putting into research," Eakin said. "Arthritis can rob people of their lives, and as a leading cause of disability, it is why people retire and go into assisted living, and it's a dramatic cost to our national economy. We can't fix health care if we can't fix arthritis."

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Arthritis patience wearing thin across the province – TheChronicleHerald.ca

Tuesday, March 7th, 2017

Many Nova Scotians suffer with the pain of osteoarthritis. In fact, Nova Scotia is the province with the highest rate of osteoarthritis in Canada. This high rate of osteoarthritis may be due, at least in part, to the high number of seniors within Nova Scotia. We have the highest percentage of seniors in Canada, with more than 18 per cent of the population being 65 years of age or older.

In cases of advanced osteoarthritis of the hip or knee, a joint replacement procedure is an excellent treatment which provides pain relief and significant improvements in mobility. However, Nova Scotians may have to wait extended periods of time in order to receive a joint replacement.

Statistics were released recently by Nova Scotias auditor general on knee and hip replacement wait times here in Nova Scotia. The wait times are worrisome and falling far behind the national average. While the national benchmark for these joint replacement procedures is six months, Nova Scotians suffering with advanced arthritis are waiting over two years on average.

Many factors contribute to these lengthy wait times, including the number of people needing these surgeries, healthcare infrastructure and a shortage of doctors, nurses and other healthcare professionals.

Many people suffering with arthritis find themselves waiting for a joint replacement for extended periods of time (years) with pain which limits their lives. Unfortunately these arthritis sufferers may not be able to perform some activities of daily life including gardening, lifting heavy objects, doing yard work and walking short distances in some cases. Thankfully there are things which can be done in the meantime in order to limit the pain and disability associated with osteoarthritis of the hip and knee.

Exercise: Although exercise can be uncomfortable at times for some arthritis sufferers the discomfort typically eases after the first few minutes of exercise. The key is doing light to moderate levels of exercise on a regular basis and aiming to meet Canadas physical activity guidelines of at least 150 minutes of aerobic exercise per week and two sessions of strengthening exercise per week. These goals could be achieved by walking briskly for 30 minutes five times per week and having two strength training sessions at a gym per week.

Weight management: Keeping a healthy bodyweight is important for the management of arthritis associated pain. If a person with osteoarthritis is overweight losing weight will help to alleviate their pain and improve their mobility.

Platelet-rich plasma (PRP): A PRP injection is a treatment for osteoarthritis which research has shown can provide lasting relief for the pain associated with osteoarthritis. This treatment uses a small amount of a persons own blood plasma which is rich in platelets. Platelet rich plasma works by introducing platelets (which are rich in growth factors) directly to the site of damage. This high concentration of growth factors stimulates healing within the arthritic joint. PRP is a safe treatment as it uses simply a component of your own blood.

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Arthritis patience wearing thin across the province - TheChronicleHerald.ca

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Research gaps persist in psoriasis, psoriatic arthritis – ModernMedicine

Monday, March 6th, 2017

Orlando The advent of increasingly effective and still costly biologic drugs for psoriasis and psoriatic arthritis (PsA) has highlighted the fact that dermatologists do not know which patients would benefit most from preventative measures.

A key unanswered question in psoriasis is whether physicians can predict and therefore prevent progression to PsA, said Mark Lebwohl, M.D. He is Sol and Clara Kest Professor and Chairman, Department of Dermatology, Icahn School of Medicine at Mount Sinai.

Before biologics, "The drugs that we had helped the pain of arthritis but were not dramatically effective at preventing joint destruction. Methotrexate is a classic example patients still benefit from it today, but the joints continue to deteriorate as evidenced by x-rays."

Tumor necrosis factor (TNF) alpha inhibitors were the first drug class allowed to claim that they prevent radiographic progression of PsA. "Etanercept was the first, followed by infliximab and adalimumab. Then came golimumab and certolizumab. These 5 drugs are dramatically effective for psoriatic arthritis they don't just get rid of the pain, but they also prevent x-ray progression."

More recently, the interleukin (IL) 17 blockers secukinumab and ixekizumab have shown similar abilities. "We have quite a few tools now to prevent joint damage. If we knew in advance which patients with psoriasis were going to develop psoriatic arthritis, it would help us help our patients. We could put them on those drugs early to prevent joint damage."

Among patients with psoriasis and PsA, he said, 72% present with psoriasis first. MRIs can show bone marrow edema (a sign of impending joint damage), "But we need better tests to predict which patients will get psoriatic arthritis." To that end, said Dr. Lebwohl, several companies are investigating genetic markers, while physicians continue to explore use of imaging modalities. "A genetic or serologic marker would be most helpful."

Similarly, researchers are attempting to predict which patients will develop other comorbidities such as cardiovascular disease. "When the biologics came out, patients were put into registries. And we've been finding, particularly with the TNF blockers, that there's a dramatic reduction in heart attacks in people who take these drugs."

A third knowledge gap, Dr. Lebwohl said, is which patients will respond to which treatments. "The new treatments that are coming out are dramatically effective in almost everybody. The problem is, they all cost a fortune." Knowing which patients would likely respond best and which ones would do just as well with cheaper treatments will help dermatologists and their patients immensely, he said.

Disclosures: Dr. Lebwohl has been a clinical investigator for most manufacturers of drugs for psoriasis and psoriatic arthritis. All payments from these companies go not to him but to Mount Sinai.

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Research gaps persist in psoriasis, psoriatic arthritis - ModernMedicine

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Jonathan Allen unconcerned about shoulder arthritis – NFL.com

Sunday, March 5th, 2017

INDIANAPOLIS -- If the arthritis in Jonathan Allen's surgically repaired shoulders becomes a problem for him during his NFL career, it will have already been an awfully long one.

The former Alabama star said Saturday that doctors have told him the condition shouldn't affect him for 15-20 years, according to the doctors he spoke with.

"The shoulder feels good. Every doctor said if there's a problem, it's after football, way after football. I have no concerns with it at all," Allen said at the NFL Scouting Combine. "... They said I have some arthritis in my left shoulder. It's not really a problem now, but it might be a problem 15, 20 years down the road so I'm not worried about that right now. I'm worried about playing good for whichever team I go to."

NFL Media Insider Ian Rapoport reported Thursday that Allen has mild arthritis in both shoulders.

It certainly never showed up on the field at the college level. Allen was a durable anchor on Alabama's vaunted defensive line for more than two years as a starter. He piled up 22.5 sacks over his last two years in college, playing in all 30 Crimson Tide games over that stretch. With the versatility to play multiple positions along the defensive front, and an ability to defend the run to go with his pass rush skills, Allen is considered one of the elite prospects in the draft.

He repped 225 pounds 21 times on the bench press for NFL scouts Saturday, and said he's feeling fine physically.

"I have no restrictions on anything I do. Like I said I feel good. It's probably the best I've felt in the last four years. I feel good, refreshed, re-charged, ready to go," Allen said.

NFL Network draft expert Mike Mayock ranked Allen as the No. 1 interior defensive lineman in the draft entering the combine.

Follow Chase Goodbread on Twitter @ChaseGoodbread.

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Huddersfield woman’s new self-help group for arthritis sufferers – Huddersfield Examiner

Sunday, March 5th, 2017

Trish Sahin was only in her thirties when she first began to suffer sharp pains in her knees.

At the time she was a hockey player and otherwise fit and well. A year later she was diagnosed with osteoarthritis and her life changed forever.

Today, Trish, 58, a former art and design teacher, is severely disabled. She walks with the aid of sticks and lives in permanent pain. Two years ago she had to give up work as a supply teacher in secondary schools because her mobility was so restricted. According to the Health and Safety Executive up to one third of people with a musculo-skeletal problem such as arthritis retire early, give up work or reduce their hours.

She is far from being alone in her suffering and yet the condition itself can be isolating. Osteoarthritis is the most common form of arthritic disease and affects 8m people in the UK. The nature of the disease means that sufferers can end up feeling depressed and reluctant to make the effort to go out and about.

As Trish, who lives in Clayton West, explains: I know a lot of people like me who suffer like this and end up staying in all day. I get frustrated and very, very down at times. You isolate yourself, so you get lonely. I do have friends who I go out with but I have to remember not to talk about my arthritis because people get sick of hearing about it - even though its on your mind all the time.

In order to tackle the problem Trish has signed up to become a Champion Volunteer for the charity Arthritis Care, which runs a project entitled Living Well With Arthritis.

She is hoping to establish a peer support drop-in group in Kirkburton, at which arthritis patients can get together on a regular basis to share experiences and information. She said: It will get me out of the house and, hopefully, get other people out of the house. Its given me a purpose. The group is for people of all ages. I know of one young girl with arthritis who had two knee replacements by the age of 24.

Arthritis is an umbrella term for a vast array of conditions - from gout and lupus to rheumatoid arthritis, which is an auto-immune disease. Trish also has the auto-immune condition giant cell arteritis, an inflammation of blood vessels in the head. Many arthritic diseases are painful enough to require constant pain medication and the use of anti-inflammatory drugs and steroids.

Trish has had two knee replacements and hip surgery and is on a cocktail of medication, including steroids. A side effect has been weight gain, in itself bad news for arthritis sufferers as excess weight puts strain on joints. She recently joined a slimming club to lose the four stones gained in the last two years since taking steroids, but says shes battling against reduced mobility and an appetite stimulated by the drug.

Arthritis Care would like to hear from other arthritis patients in the area willing to work as volunteers at information and drop-in points (theres one at Dewsbury Hospital), run peer support workshops (like Trish) or offer telephone advice sessions on practical subjects such as diet and exercise, pain management and living aids.

For her own group Trish would like to hear from people able to provide transport so that those without their own vehicles can attend.

I want people to share their experiences, says Trish, so we can compare notes on medication, diet, benefits and pain management, that sort of thing.

Over the last couple of years shes faced practical issues, such as finding a single-storey house (a bungalow provided by Kirklees), getting a blue badge for her car, and accessing disability benefits to top up her pension. She understands the frustrations faced by disabled people undergoing fitness for work assessments. Theres an assumption that you are putting it on, she says, and you can have a good day when youre walking better. But the pain is awful. I lie in bed at night and its a dull, throbbing ache, that stops you sleeping. No-one wants to be like this. I get these really black moods, Im on anti-depressants as well as everything else.

Trish believes there may be a genetic component to her arthritis as other members of her family have developed joint problems. Many types of arthritis have no known cause but osteoarthritis may result from injury, obesity and ageing. While the condition cant be cured, Arthritis Care says that early diagnosis, treatment and good management can delay the progression and ease symptoms. However, a survey conducted by the charity last year found that many people wait two years or more before seeking help with painful joints.

If youd like to become a volunteer for Arthritis Care in the Kirklees area or help Trishs venture contact Emma Marshall, Volunteer Co-ordinator, on 07968624377 or EmmaM@arthritiscare.org.uk

Osteoarthritis can cause joint pain and stiffness; it is more common in women and the elderly. It develops when the cartilage protecting bones changes and erodes.

Rheumatoid arthritis affects 700,000 people in the UK and is an auto-immune condition that causes inflammation of the joints.

There are forms of arthritis that affect children and young people, it is not just a condition of the elderly.

By the year 2030 it is estimated that there will be a 50% increase in the number of people living with arthritic conditions in the UK.

Figures from Arthritis Care show that last year around 1 in 5 of the general population consulted their GP about a musculo-skeletal problem such as arthritis and 7.5m working days were lost because of arthritic conditions.

According to the World Health Organisation arthritis is the leading cause of disability.

Losing excess weight, taking exercise and eating a healthy diet - some sufferers, like Trish, recommend a Mediterranean diet - can all help ease the painful symptoms.

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Huddersfield woman's new self-help group for arthritis sufferers - Huddersfield Examiner

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Fashion for People with Arthritis and Other Painful Conditions – Healthline

Sunday, March 5th, 2017

Fashion designer Michael Kuluva hasnt let rheumatoid arthritis (RA) get in his way.

But hes acknowledged a notable void in the fashion and beauty industries when it comes to adaptive options and more inclusive designs for people living with an illness or disability.

He isnt alone.

There are online initiatives in the form of hashtags, blogs, Twitter chats, and Instagram accounts that explore the relationship between fashion and chronic illness. It can be a pain for people in pain to dress themselves.

It can also be difficult to find fashionable, stylish options that are also adaptive and functional for anyone with a disability or aching body.

Read more: Get the facts on rheumatoid arthritis

Kuluva is the founder of the label Tumbler and Tipsy, which he debuted at New York Fashion Week.

However, the former figure skater didnt always dream of a career in fashion.

After he retired from his sport in his mid-20s, Kuluva realized that he had another interest and a talent that couldnt be ignored.

He began working as an assistant for a designer despite having no formal training. He eventually secured a scholarship to the Fashion Institute of Design and Merchandising (FIDM).

During his time at FIDM, he found that he was performing well academically but couldnt perform some basic tasks.

I noticed I could not even draw a straight line, and I had other little setbacks. I had trouble cutting fabric and I began comparing myself to other students, Kuluva told Healthline. My joints just weren't doing what they should be. I had pain. Then, one day, walking from class to my car, my back suddenly gave out.

Kuluva first thought he had a kidney stone. He saw a urologist who told him the issue wasnt urological and suggested that Kuluva see a rheumatologist.

After visiting three doctors and waiting months to be seen at the Mayo Clinic, Kuluva was eventually diagnosed with RA. Through trial and error, he found a combination of medications that worked pretty well for controlling his condition.

No medication is ever 100 percent, but my regimen is going well, he said. If I miss a few weeks of treatment, because of travel or fashion shows for example, then I can definitely feel that. I didnt really have issues while figure skating. I had some bursitis, but I dont think it had anything to do with my RA. So, my decision to retire from skating was not related to my rheumatoid arthritis, but Im glad I retired when I did.

Read more: The making of an American Ninja Warrior

After showing a collection that would eventually help to launch the career of model Kendall Jenner, Kuluva started to think about how he could use his art and his platform for good.

Theres been a lot of proud moments a lot of great moments that are unforgettable. Kendall Jenner helped to launch my career and vice versa, he said. This gave me kind of a voice in society. So my CreakyJoints collection was a pivotal moment where I got to express myself within my fashion.

The collection is a collaboration with the arthritis-related nonprofit CreakyJoints, to promote RA awareness on the runway.

CreakyJoints has worked with celebrities like actress Megan Park to promote RA awareness, but this fashion collection came about rather organically.

Real Housewife of New York Jill Zarins daughter was backstage in my dressing room, and we got to talking because she has a form of arthritis, too. It got me thinking, and after our conversation I figured I might contact CreakyJoints after that collection was done, Kuluva recalled.

He said he just wanted to lend his voice to a cause and be an advocate for something.

I like the nonprofit mindset of CreakyJoints, all for the patients. The president, Seth, has [spondyloarthritis], and so he really gets it, Kuluva said. So we all had lunch and brainstormed what we could do together. They pretty much left it up to me. I came up with putting starbursts on all the joints in my SS2017 show. The starbursts, while fashionable, represent the joint pain.

Kuluva said the fashion industry still has a void to fill with adaptive and inclusive fashions for people who are sick or have disabilities. This is especially in terms of shoes and footwear.

Kuluva did acknowledge that some current trends of more comfortable and functional styles may be ideal for people with chronic pain.

As for his own work, he continues to dream big and strives to do more. Kuluva has a history of incorporating charity and social change in his work as a fashion designer.

I was hoping to inspire change with the collection that I did. I hope that it opens eyes and spreads awareness, Kuluva said.

In an interview for The Mighty, Kuluva explained his CreakyJoints collection by saying, It really shows the joints affected by arthritis. Its an explosion of colors on joints that would light up on tests for arthritis.

Being diagnosed with RA at age 28 could have destroyed his career or his vision for the future. But it didnt.

Kuluva advises other young people diagnosed with illnesses like RA to keep looking forward and not hiding their condition.

As long as you're open and honest with your doctor and your family with what is going on with you and your health, you can get the help you need. An organization like CreakyJoints can help you understand that you may have restrictions, but you can still achieve great things, he said.

Read more: Dolls with disabilities gaining in popularity

Kuluva is doing his part to spread awareness and other designers are, too.

Tommy Hilfiger has designed some adaptive clothing for children with special needs and physical disabilities.

Fashion bloggers have fought back against ableism in fashion shoots. (Like Kylie Jenner and Lady Gaga using gilded wheelchairs as props.)

Madeline Stewart has made headlines as a model with Down syndrome.

New York Fashion Week began to use models with disabilities, including amputee Shaholly Ayers.

Beyonc cast disability activist Jillian Mercado as a model in one of her advertising campaigns.

And many more brands are coming out with adaptive clothing that is fashionable and chic, yet still provides necessary comfort and functionality.

Still, many fashions dont have stylish, easy-to-wear or adaptive alternatives, or inclusive runway shows or advertising campaigns.

The beauty industry also lacks variety when it comes to ergonomic and adaptive options for hairstyling tools and makeup brushes.

But designers like Kuluva think that these baby steps toward progress are working in favor of people with health problems or physical disabilities.

I think the industry will get there, he said.

For now, the Arthritis Foundation has a list of approved arthritis-friendly products with the Ease of Use seal of approval, to help people with arthritis dress themselves more easily. They also have suggested footwear brands and options.

Other websites, like the now-defunct Arthriving site from Aleve, have attempted to catalog the best products to help people with arthritis pain function better when it comes to daily activities like drying their hair, cooking, buttoning a blouse, fastening a bra, or tying their shoes.

While that site is gone, there are many blogs that offer tips for living well with chronic pain or limitations in terms of physical mobility and ability.

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Fashion for People with Arthritis and Other Painful Conditions - Healthline

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Rheumatoid arthritis: New treatment option for difficult-to-treat patients – Science Daily

Saturday, March 4th, 2017
Rheumatoid arthritis: New treatment option for difficult-to-treat patients
Science Daily
Nowadays, treatments for rheumatoid arthritis are changed very quickly, once it is established that one is failing to effect any significant improvement. This means that many patients can be helped very quickly. On the other hand, there are patients ...

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Rheumatoid arthritis: New treatment option for difficult-to-treat patients - Science Daily

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