Learn about addressing the emotional side of living with diabetes as part of comprehensive diabetes care.
Jeffrey Gonzalez, PhD, is a co-author of the Psychiatric and Psychosocial Issues among Individuals Living with Diabetes chapter in the NIDDK publication Diabetes in America, 3rd Edition. Here, he discusses how depression and diabetes distress affect people living with diabetes and what health care professionals can do to help their patients.
Q: Why should health care professionals be concerned about depression in patients who have diabetes?
A: Health care professionals should be aware that depression is more common in people with diabetes, and, when its present, its associated with poor health outcomes in people who have diabetes.
A 2001 meta-analysis suggested that depression could be about twice as common in people with diabetes as in people without diabetes, and that's similar to what's been found in other chronic illnesses. In 2008, some colleagues and I did a meta-analysis of the literature that found depression was consistently associated with poor diabetes self-management. Other meta-analyses have found consistent associations between depression and hyperglycemia, increased risks of diabetes complications, and even early mortality.
Q: What is diabetes distress and how is it related to depression?
A: In the medical field and in many conversations around feeling down or blue, we often use the concept, clinical depression. Thats partly because the Diagnostic and Statistical Manual of Mental Health highlights depression as a mental health disorder that can be diagnosed based on certain symptoms. However, its hard to draw the line between clinical depression and emotional reactions to stressful situations. Big events, such as loss of a loved one or loss of employment, can cause emotional responses and symptoms that are very similar to those of depression, at least over the short term.
One way that depression and diabetes distress are different is that diabetes distress is not thought of as a mental illness. Diabetes distress is a construct proposed by researchers to describe the emotional response to living with diabetes, a life-threatening illness that requires chronic, demanding, self-management. However, tools used to screen for diabetes distress dont ask only about emotions. They also ask about problems people have with their diabetes, such as a lack of social support, a poor relationship with their doctor, or difficulty accessing health care. Diabetes distress captures a persons experience with the problems associated with diabetes.
Diabetes distress is much more common than clinical depression among patients with diabetes. Recent literature reviews suggest that between 30 and 40 percent of adults with diabetes are likely to report significant levels of diabetes distress over time.
Q: How is diabetes distress related to diabetes treatment adherence and self-management?
A: A body of research shows that people who report more diabetes distress are also more likely to report more problems with self-management and medication adherence and may also have higher blood glucose levels. Some evidence suggests they may also be more likely to experience hypoglycemia and fear of hypoglycemia, which can affect their ability and willingness to take their medications
Diabetes distress and everyday diabetes management are closely linked, and its probably a two-way street. People feel stressed and have emotional responses such as feeling down or hopeless. Then, they may avoid dealing with their diabetes and experience setbacks, such as hypoglycemia, hyperglycemia, or complications. Those setbacks further contribute to their distress, and it can become a vicious cycle.
Q: Among people with diabetes, do some people have a higher risk for depression or diabetes distress than others?
A: Yes, some people with diabetes appear to have a higher risk.
Q: How can health care professionals address depression or distress in patients who have diabetes?
A: Addressing the emotional side of living with diabetes should be part of comprehensive diabetes care. Emotional distress of some kind is going to be more common in patients living with diabetes and may be caused by some of the stresses related to diabetes.
Providers can ask questions about how people are doing, how theyre feeling, and what aspects of their diabetes are causing stress. Providers can also acknowledge and normalize the idea that diabetes distress is common and could occur sometime in the course of the illness, perhaps with the onset of complications or with life changes that make following a diabetes self-management routine more difficult.
Diabetes distress can cause people to feel stuck and to benefit less from their diabetes treatments. Providers should look out for people experiencing diabetes distress and offer support by talking with patients about distress and encouraging them to think about ways to better manage their distress. Providers may also be able to make the diabetes treatment regimen less burdensome for the patient.
Its also important for providers to identify mental health professionals who can collaborate as part of the care team and provide more specialized help when its needed. Providers should think about how to help their patients find someone who can assist with depression or more significant problems with diabetes distress.
Q: Is there anything else that health care professionals should know about depression and diabetes distress in people with diabetes?
A: Depression and diabetes distress can be treated. We know about treatments for depression, from psychotherapy to pharmacological treatments. Diabetes distress seems to respond to many different kinds of interventions, including educational and supportive interventions.
A number of questionnaires are available to help providers screen for depression and diabetes distress in patients. As with any screening tool, the majority of people who screen positive wont actually have the disorder. Providers need to talk with patients after the screening to further evaluate what's going on. At times, providers may feel they need input from a mental health specialist to make that differential diagnosis and to recommend the most appropriate treatment.
Providers can find more information about screening and monitoring patients for depression and diabetes distress in Psychosocial Care for People with Diabetes: A Position Statement of the American Diabetes Association.
Q: What research is being conducted on the relationship between depression and diabetes?
A: More research in this area is needed. One area of current research is the dissemination and implementation of treatment models that we already know can be helpful.
For example, Im currently finishing a National Institutes of Health-supported trial that focuses on providing self-management support by telephone to adults with type 2 diabetes who are not at goal with their A1C. This program has been evaluated in a few previous trials, and we incorporated new components to train and support health educators in offering interventions that may be helpful for depression and diabetes distress.
Many studies are addressing how effective treatments can reach a wider number of people who need them, for example through interventions delivered by peers or community health workers. We have a mental health crisis in this country, where our mental health system does not meet the need among patients who are already identified. Screening programs that identify more people who need care will require a workforce and better reimbursements to meet that need. Over the next few years, well see more research on translating expert recommendations into care for depression and diabetes distress that can be replicated in many settings and sustained over time.
How do you address depression and diabetes distress in your patients with diabetes? Tell us below in the comments.
Follow this link:
Diabetes Distress and Depression - National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
- 001 Diabetes treated with Stem Cell Therapy [Last Updated On: June 25th, 2010] [Originally Added On: June 25th, 2010]
- 002 Diabetes - Video [Last Updated On: November 7th, 2011] [Originally Added On: November 7th, 2011]
- 003 Stem Cell Treatment vs Diet For Diabetes - Video [Last Updated On: January 11th, 2012] [Originally Added On: January 11th, 2012]
- 004 Orgenesis' Sarah Ferber, Ph.D on Using a Diabetes Patient's Own Liver Cells as a Novel Source of Insulin [Last Updated On: June 15th, 2012] [Originally Added On: June 15th, 2012]
- 005 Diabetes reversed in mice using stem cells [Last Updated On: June 27th, 2012] [Originally Added On: June 27th, 2012]
- 006 Differences between type 1 and 2 diabetes [Last Updated On: June 27th, 2012] [Originally Added On: June 27th, 2012]
- 007 Diabetes Reversed In Mice Thanks To Stem Cell Transplant [Last Updated On: June 28th, 2012] [Originally Added On: June 28th, 2012]
- 008 Diabetes Reversal In Mice Via Stem Cells [Last Updated On: June 29th, 2012] [Originally Added On: June 29th, 2012]
- 009 Diabetes drug makes brain cells grow [Last Updated On: July 6th, 2012] [Originally Added On: July 6th, 2012]
- 010 Diabetes drug helps brain growth, makes mice smarter [Last Updated On: July 6th, 2012] [Originally Added On: July 6th, 2012]
- 011 Diabetes study hit by lack of funds [Last Updated On: September 7th, 2012] [Originally Added On: September 7th, 2012]
- 012 Targeted Nanoparticle Probes for Embryonic Stem Cell Derived Progenitor Cells - Video [Last Updated On: November 17th, 2012] [Originally Added On: November 17th, 2012]
- 013 Diabetes Stem Cell Patient Testimonials - Video [Last Updated On: December 19th, 2012] [Originally Added On: December 19th, 2012]
- 014 Diabetes Precations - Tooth decay Treatment - Video [Last Updated On: February 5th, 2013] [Originally Added On: February 5th, 2013]
- 015 Potential Diabetes Breakthrough - Video [Last Updated On: April 29th, 2013] [Originally Added On: April 29th, 2013]
- 016 APDF: Stem cells in diabetes -Dr Kumaravel - Video [Last Updated On: October 4th, 2013] [Originally Added On: October 4th, 2013]
- 017 Diabetes: Progress toward stem cell therapies - Video [Last Updated On: January 25th, 2014] [Originally Added On: January 25th, 2014]
- 018 Diabetes 22 years - Video [Last Updated On: February 3rd, 2014] [Originally Added On: February 3rd, 2014]
- 019 Treatment for Diabetes - with Stem cells - Video [Last Updated On: April 28th, 2014] [Originally Added On: April 28th, 2014]
- 020 Diabetes cure? Cloned human stem cells could provide the answer - Video [Last Updated On: May 1st, 2014] [Originally Added On: May 1st, 2014]
- 021 Stem Cell Research Diabetes - Video [Last Updated On: May 26th, 2014] [Originally Added On: May 26th, 2014]
- 022 CIRM Movie on Diabetes for Viacyte - Video [Last Updated On: May 27th, 2014] [Originally Added On: May 27th, 2014]
- 023 James Shapiro: "Cutting Edge Islet and Stem Cell Transplant Therapies in the Clinic for Diabetes" - Video [Last Updated On: August 4th, 2014] [Originally Added On: August 4th, 2014]
- 024 Step 1 - lupus / diabetes / alzheimers syrum - Take 5ml blood - Video [Last Updated On: October 6th, 2014] [Originally Added On: October 6th, 2014]
- 025 Major step toward diabetes cure - Video [Last Updated On: October 11th, 2014] [Originally Added On: October 11th, 2014]
- 026 Stem Cells Could Produce Insulin - Video [Last Updated On: October 14th, 2014] [Originally Added On: October 14th, 2014]
- 027 Diabetes Breakthrough! Human Stem Cells Altered to Make Insulin! - Video [Last Updated On: October 15th, 2014] [Originally Added On: October 15th, 2014]
- 028 Did Scientists Just Cure Type 1 Diabetes? - Video [Last Updated On: October 15th, 2014] [Originally Added On: October 15th, 2014]
- 029 Breakthrough in diabetes stem cell research - Video [Last Updated On: October 16th, 2014] [Originally Added On: October 16th, 2014]
- 030 TESTIMONI LAMININE - Ginjal Diabetes dan Komplikasi - Video [Last Updated On: December 1st, 2014] [Originally Added On: December 1st, 2014]
- 031 Laminine - Seminar Diabetes - Video [Last Updated On: December 4th, 2014] [Originally Added On: December 4th, 2014]
- 032 stemtech testimonial diabetes www afastemcell com - Video [Last Updated On: April 29th, 2015] [Originally Added On: April 29th, 2015]
- 033 Afastemcell - testimoni penderita diabetes - Video [Last Updated On: April 29th, 2015] [Originally Added On: April 29th, 2015]
- 034 Stress: American Diabetes Association [Last Updated On: May 19th, 2015] [Originally Added On: May 19th, 2015]
- 035 Diabetes.net Welcome to the Original Diabetes Network [Last Updated On: May 19th, 2015] [Originally Added On: May 19th, 2015]
- 036 Diabetes mellitus - Wikipedia, the free encyclopedia [Last Updated On: May 19th, 2015] [Originally Added On: May 19th, 2015]
- 037 Diabetes Warrior - Diabetes Management from a Paleolithic ... [Last Updated On: May 20th, 2015] [Originally Added On: May 20th, 2015]
- 038 children with DIABETES Online Community [Last Updated On: May 27th, 2015] [Originally Added On: May 27th, 2015]
- 039 Diabetes mellitus [Last Updated On: May 30th, 2015] [Originally Added On: May 30th, 2015]
- 040 Diabetes - Type 1 Diabetes, Type 2 Diabetes, Gestational ... [Last Updated On: June 2nd, 2015] [Originally Added On: June 2nd, 2015]
- 041 Diabetes: Causes, Symptoms and Treatments [Last Updated On: July 12th, 2015] [Originally Added On: July 12th, 2015]
- 042 Diabetes mellitus type 1 - Wikipedia, the free encyclopedia [Last Updated On: July 14th, 2015] [Originally Added On: July 14th, 2015]
- 043 Type 2 Diabetes: Everything You Need to Know [Last Updated On: July 23rd, 2015] [Originally Added On: July 23rd, 2015]
- 044 Washington, DC - American Diabetes Association [Last Updated On: August 21st, 2015] [Originally Added On: August 21st, 2015]
- 045 Type 1 Diabetes: Causes, Tests, Symptoms and Treatments [Last Updated On: August 23rd, 2015] [Originally Added On: August 23rd, 2015]
- 046 Diabetes management - Wikipedia, the free encyclopedia [Last Updated On: August 24th, 2015] [Originally Added On: August 24th, 2015]
- 047 Type 2 Diabetes: Causes, Symptoms, Prevention, and More [Last Updated On: August 27th, 2015] [Originally Added On: August 27th, 2015]
- 048 Diabetes Diet and Food Tips: Eating to Prevent, Control ... [Last Updated On: August 29th, 2015] [Originally Added On: August 29th, 2015]
- 049 Questions & Answers about Diabetes in the Workplace and ... [Last Updated On: August 29th, 2015] [Originally Added On: August 29th, 2015]
- 050 Diabetes Symptoms: Common Symptoms of Diabetes [Last Updated On: August 29th, 2015] [Originally Added On: August 29th, 2015]
- 051 Diabetes mellitus type 2 - Wikipedia, the free encyclopedia [Last Updated On: August 29th, 2015] [Originally Added On: August 29th, 2015]
- 052 Diabetes center - US News [Last Updated On: August 29th, 2015] [Originally Added On: August 29th, 2015]
- 053 About Diabetes - American Heart Association [Last Updated On: August 29th, 2015] [Originally Added On: August 29th, 2015]
- 054 Diabetes, Type 2 Medication | Drugs.com [Last Updated On: August 29th, 2015] [Originally Added On: August 29th, 2015]
- 055 Diabetes mellitus - Lab Tests Online [Last Updated On: August 29th, 2015] [Originally Added On: August 29th, 2015]
- 056 Diabetes | Overview [Last Updated On: August 29th, 2015] [Originally Added On: August 29th, 2015]
- 057 Diabetes | Nutrition.gov [Last Updated On: August 29th, 2015] [Originally Added On: August 29th, 2015]
- 058 NJDOH - Family Health services [Last Updated On: August 29th, 2015] [Originally Added On: August 29th, 2015]
- 059 Bridgewater New Jersey Office of the American Diabetes ... [Last Updated On: August 29th, 2015] [Originally Added On: August 29th, 2015]
- 060 Type 2 Diabetes Condition Center - Health.com [Last Updated On: September 12th, 2015] [Originally Added On: September 12th, 2015]
- 061 NIHSeniorHealth: Diabetes - What is Diabetes? [Last Updated On: September 12th, 2015] [Originally Added On: September 12th, 2015]
- 062 Diabetes [Last Updated On: September 12th, 2015] [Originally Added On: September 12th, 2015]
- 063 Diabetes - Symptoms, Diagnosis, Treatment of Diabetes - NY ... [Last Updated On: September 12th, 2015] [Originally Added On: September 12th, 2015]
- 064 Raleigh North Carolina Office of the American Diabetes ... [Last Updated On: September 13th, 2015] [Originally Added On: September 13th, 2015]
- 065 Louisiana Office of the American Diabetes Association [Last Updated On: September 21st, 2015] [Originally Added On: September 21st, 2015]
- 066 Home - Palm Beach Diabetes [Last Updated On: September 29th, 2015] [Originally Added On: September 29th, 2015]
- 067 Diabetes Basics - What is Diabetes? - Lifeclinic [Last Updated On: October 3rd, 2015] [Originally Added On: October 3rd, 2015]
- 068 Diabetes Center | Jefferson University Hospitals | Serving ... [Last Updated On: October 3rd, 2015] [Originally Added On: October 3rd, 2015]
- 069 Kentucky: Cabinet for Health and Family Services - Diabetes [Last Updated On: October 3rd, 2015] [Originally Added On: October 3rd, 2015]
- 070 Virginia Diabetes and Endocrinology [Last Updated On: October 9th, 2015] [Originally Added On: October 9th, 2015]
- 071 Chicago Illinois Office of the American Diabetes Association [Last Updated On: October 17th, 2015] [Originally Added On: October 17th, 2015]
- 072 Diabetes Facts & Information | Joslin Diabetes Center [Last Updated On: November 2nd, 2015] [Originally Added On: November 2nd, 2015]
- 073 Michigan: American Diabetes Association [Last Updated On: August 4th, 2016] [Originally Added On: August 4th, 2016]
- 074 Diabetes - MidMichigan Health [Last Updated On: August 4th, 2016] [Originally Added On: August 4th, 2016]
- 075 WHO | Diabetes programme [Last Updated On: August 4th, 2016] [Originally Added On: August 4th, 2016]
- 076 Were creating a world without T1D. - JDRF [Last Updated On: August 4th, 2016] [Originally Added On: August 4th, 2016]
- 077 Chicago Diabetes Project | Researching to Cure Diabetes [Last Updated On: August 4th, 2016] [Originally Added On: August 4th, 2016]
- 078 Bridgewater, New Jersey - American Diabetes Association [Last Updated On: August 4th, 2016] [Originally Added On: August 4th, 2016]
- 079 Philadelphia Pennsylvania Office of the American Diabetes ... [Last Updated On: August 4th, 2016] [Originally Added On: August 4th, 2016]
- 080 DPH Disease Information: Diabetes Info - Delaware [Last Updated On: August 4th, 2016] [Originally Added On: August 4th, 2016]