Wow, you survived cancer? What's your secret to health care?
As absurd as that sounds, its a question many Americans who get sick are still asking as we ring in the year 2020. Getting health care in this country is still so circuitous it often does feel like a secret a maze deciphered in private that's never quite mastered. The reward for solving it? Perhaps your life; perhaps the loss of your life savings. And thats if youre lucky.
Even with the Affordable Care Act, almost 30 million are without health insurance in the U.S. And if youve perused plans on the ACA marketplace, youll know why. Theyre pricey, and a new year brings fears that insurance premiums are once again rising. (Who knew the inflation rates on a pap smear were that high?!) Meanwhile, 14 Republican-led states are still refusing to expand Medicaid as stipulated in the ACA, even though the federal government would pay for 90 percent of the cost. Why? Something about repeal and replace or socialism. Its hard to keep track.
Even with the Affordable Care Act, almost 30 million are without health insurance in the U.S. And if youve perused plans on the ACA marketplace, youll know why.
I traveled to three states, each with their own unique health care access challenges, for my new MSNBC special "Red, White, and Who? Between Texas, New York and Utah there are major differences in how easy it is to see a doctor without going bankrupt. But every single person I spoke with regardless of job, socioeconomic status or even political affiliation had one identical anxiety: healthcare in one of the most advanced countries in the world is ridiculously, hopelessly complicated.
Get the think newsletter.
Im retired, but I feel like a have a job, Larry Chiuppi told me sitting outside at an RV park in Houston, blocks from one of the top cancer treatment hospitals in the country. Larry has been caring for his wife Nancy Raimondi, who has blood cancer, for over a year. During that time, he himself was diagnosed with prostate cancer. Even with her Medicare and his private health plan under the ACA, navigating the billing systems for the endless hospital visits, specialists and tests each with their own separate charges requires a huge amount of time and vigilance. He tells me they once got a $14,000 bill for a stem cell transplant because someone forgot to link Nancys Medicare. Larry imagined many people wouldve just tried to pay it. And most Americans dont have a retirees free time and Larrys persistence to help them through the bureaucracy, an added burden of getting well.
We also dont all have a mother like Sandra Stein. She and her family live in New York, a state where the uninsured population is less than five percent, and 6.5 million are on Medicaid. I met Sandra on a street corner in upper Manhattan, where activists were flyering for the New York Health Act, a bill that would give every New Yorker state-funded care. Sandra believes in single-payer healthcare because she has experienced the mind-numbing labyrinth that is the private insurance system firsthand.
When her son was nearly three, he developed a rare neurological disease that left him unable to walk or speak. At the time, she and her husband had private insurance, which was relatively good insurance, according to Sandra. But that didnt make things easier. When they first went to the hospital in an ambulance, the doctors there didnt take their insurance even though the hospital did. Her son ultimately stayed in three different hospitals over the course of 15 months.
When we got home it was my job to figure out the pile of bills and the collections threats, she told me. Its been eight years, but Sandras voice cracked like the memory happened yesterday. I couldnt imagine how hard it mustve been to be afraid for your childs life while collections agents breathed down your neck. Sandra says the billing department sought her out even while her son was in the ICU, and that there were so many billing errors that she ultimately asked for an audit.
And yet, Sandra, Larry and Nancy are the lucky ones. They have health insurance, and they have the time and resources to be able to make their way through the bureaucratic hall of mirrors and toward a fighting chance at getting well.
Its this cruel opacity of the private insurance system, on top of the rising monthly costs of just having a plan, that can be the difference between life and death. And it keeps a surprising number of Americans away from the system altogether. Like a rodeo cowboy I met in Texas, whose story youll just have to watch (Im not spoiling it all!). Its also led Americans like Sandra to believe that a massive simplification of our health care system is far overdue.
For many, that simplification comes in the form of cutting out the profit motive and moving toward government-funded insurance, like Medicare for All, which Big Pharmas enemy number one Sen. Bernie Sanders and I hashed out over bagels in a New York City deli.
Ultimately what became clear through my travels is that healthcare in America is often overpriced and even dysfunctional, but its the lack of transparency that can be the most insidious. You pretty much have to be a health care policy expert, or have a loved one who can quit their job to become one, in order to ensure proper help.
Its also strange that in a country that loves the free market as much as we do, we the consumer have no idea how much anything costs when we walk into a hospital. Why would we? Our health is priceless, so we are simply at the mercy of an ineffective system. That is, unless we fight for something different.
Red, White, and Who premieres on MSNBC on Dec. 29 at 9 p.m. E.T.
Francesca Fiorentini is journalist and comedian. She is the host of "Red, White and Who?" on MSNBC and Newsbroke on AJ+. Follow her @franifio.
Read the rest here:
Health care in America is dysfunctional but its lack of transparency is downright dangerous - NBC News
- 001 Strange lesions after stem-cell therapy [Last Updated On: June 25th, 2010] [Originally Added On: June 25th, 2010]
- 002 THE STEM CELL DEBATE IS DEAD says Dr OZ to Michael J. Fox and Orpah - Video [Last Updated On: October 13th, 2011] [Originally Added On: October 13th, 2011]
- 003 Cord Blood Stem Cells and Top 10 Causes of Death in US - Video [Last Updated On: October 13th, 2011] [Originally Added On: October 13th, 2011]
- 004 A Cure for Liver Disease - Video [Last Updated On: October 13th, 2011] [Originally Added On: October 13th, 2011]
- 005 Elaine Fuchs Part 1: Introduction to Stem Cells English Subtitle - Video [Last Updated On: October 13th, 2011] [Originally Added On: October 13th, 2011]
- 006 Elaine Fuchs Part 2: Tapping the Potential of Adult Stem Cells, and Summary - Video [Last Updated On: October 13th, 2011] [Originally Added On: October 13th, 2011]
- 007 Obama on Embryonic Stem Cell Research - Video [Last Updated On: October 13th, 2011] [Originally Added On: October 13th, 2011]
- 008 Stem cell treatment on horse a success, vet says - Video [Last Updated On: October 13th, 2011] [Originally Added On: October 13th, 2011]
- 009 Repairing Damaged Hearts with Stem Cells - Video [Last Updated On: October 13th, 2011] [Originally Added On: October 13th, 2011]
- 010 YEAR 3045 # 10 CLONING TERRA FORMING LOST SOULS LIFE DEATH STEM CELL GENETICS - Video [Last Updated On: October 13th, 2011] [Originally Added On: October 13th, 2011]
- 011 Heart repair using own stem cells after heart attack: Future Health keynote speaker - Video [Last Updated On: October 13th, 2011] [Originally Added On: October 13th, 2011]
- 012 Adult Stem Cells and Regeneration Part 6 of 6 - Video [Last Updated On: October 13th, 2011] [Originally Added On: October 13th, 2011]
- 013 Dr. Oz to Oprah and Michael J Fox: "The stem cell debate is dead." - Video [Last Updated On: October 13th, 2011] [Originally Added On: October 13th, 2011]
- 014 Insidermedicine In 60 - January 6, 2011 - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 015 Stem cells might be able to reverse the effects of a heart attack. - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 016 Osama Bin Laden DEAD [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 017 Death by Skimboard - Kidlat Young Creatives 2010 - Team Y [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 018 Adult Stem Cells and Regeneration Part 5 of 6 - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 019 Human Trachea Made from Stem Cells Transplanted into Cancer Patient - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 020 Cord Blood Treatments [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 021 Adult Stem Cells and Regeneration Part 1 of 6 - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 022 Adult Stem Cell vs Embryonic Stem Cell Research Ethics Video - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 023 Adult Stem Cells and Regeneration Part 4 of 6 - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 024 Stem Cells Research at Hadassah - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 025 Gay Marriage, Stem Cell Research and the Death Penalty - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 026 Stem cells death with phase contrast - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 027 CHOOSE!-ULTIMATE LIFE OR DEATH?-SCIENCE OR SUPERSTITION?-REASON OR FEAR?-AYN RAND-RELIGULOUS-SARAH PALIN?-NEWS-POLITICS-ATOM-ADAM- SMASHER-STEM... [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 028 Michael Savage on Reality of Embryonic Stem Cell Research - Aired on March 9, 2009 - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 029 Stem Cell Research Policy Of President Bush / Adult Versus Embryonic / Video - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 030 Live apoptosis of stem cells with cisplatin - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 031 Stem cell Fall between the cracks - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 032 Ted Dawson on using stem cells to study Parkinson's disease - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 033 Elaine Fuchs Part 1: Introduction to Stem Cells - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 034 Cord Blood Stem Cells WILL CURE the Top 10 Causes of Death in World - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 035 Discovering Religion: Ep 16 - Embryonic Stem Cells [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- 036 Embryonic Stem Cell Research - Video [Last Updated On: October 15th, 2011] [Originally Added On: October 15th, 2011]
- 037 Adult Stem Cells and Regeneration Part 3 of 6 - Video [Last Updated On: October 15th, 2011] [Originally Added On: October 15th, 2011]
- 038 Paltalk News - Ben Bova Stem Cell Research - Video [Last Updated On: October 15th, 2011] [Originally Added On: October 15th, 2011]
- 039 Stem cell research... to fund or not to fund? Should not be the question... - Video [Last Updated On: October 16th, 2011] [Originally Added On: October 16th, 2011]
- 040 Stem Cell Research: Huntington's Disease - Video [Last Updated On: October 16th, 2011] [Originally Added On: October 16th, 2011]
- 041 Can You Use Someone Else's Cord Blood Stem Cells? - Video [Last Updated On: October 17th, 2011] [Originally Added On: October 17th, 2011]
- 042 Michael J. Fox - Video [Last Updated On: October 17th, 2011] [Originally Added On: October 17th, 2011]
- 043 National History Day 2011: Many Sides Many Stakes - Video [Last Updated On: October 21st, 2011] [Originally Added On: October 21st, 2011]
- 044 Huntington's Disease: Progress and Promise in Stem Cell Research - Video [Last Updated On: October 24th, 2011] [Originally Added On: October 24th, 2011]
- 045 A Lilybugs Life - Video [Last Updated On: October 28th, 2011] [Originally Added On: October 28th, 2011]
- 046 StemCellTV Daily Report-October 26, 2011 - Video [Last Updated On: November 14th, 2011] [Originally Added On: November 14th, 2011]
- 047 Diabetes Type 1 Cure [Last Updated On: November 15th, 2011] [Originally Added On: November 15th, 2011]
- 048 Embyronic Stem Cell Research - Video [Last Updated On: November 27th, 2011] [Originally Added On: November 27th, 2011]
- 049 Prometheus and I: building new body parts from stem cells (15 Nov 2011) - Video [Last Updated On: December 9th, 2011] [Originally Added On: December 9th, 2011]
- 050 ANC Teditorial 11/23/2011 - Stem Cell Research and Cure - Video [Last Updated On: December 9th, 2011] [Originally Added On: December 9th, 2011]
- 051 11-09-04 GH - Sam McCall [Last Updated On: January 22nd, 2012] [Originally Added On: January 22nd, 2012]
- 052 Stem Cell Fraud: A 60 Minutes investigation - Video [Last Updated On: January 22nd, 2012] [Originally Added On: January 22nd, 2012]
- 053 UCD stem cell research battles Huntington's disease [Last Updated On: January 29th, 2012] [Originally Added On: January 29th, 2012]
- 054 Juventas Therapeutics Reports One Year Data From Phase I Heart Failure Clinical Trial [Last Updated On: January 31st, 2012] [Originally Added On: January 31st, 2012]
- 055 A meeting of hearts if not minds [Last Updated On: February 2nd, 2012] [Originally Added On: February 2nd, 2012]
- 056 Scientists make strides toward fixing infant hearts [Last Updated On: February 7th, 2012] [Originally Added On: February 7th, 2012]
- 057 Parkinson’s Research: Scientists Grow Artificial Stem Cells [Last Updated On: February 13th, 2012] [Originally Added On: February 13th, 2012]
- 058 Lab-Made Neurons Allow Scientists To Study A Genetic Cause Of Parkinson's [Last Updated On: February 13th, 2012] [Originally Added On: February 13th, 2012]
- 059 Brain cells created from human skin [Last Updated On: February 13th, 2012] [Originally Added On: February 13th, 2012]
- 060 Stem cells used to heal heart attack damage [Last Updated On: February 14th, 2012] [Originally Added On: February 14th, 2012]
- 061 Broken Hearts Healed with Stem Cells [Last Updated On: February 15th, 2012] [Originally Added On: February 15th, 2012]
- 062 Groundbreaking Clinical Trials Study Cord Blood Stem Cells to Help Treat Brain Injury and Hearing Loss [Last Updated On: February 17th, 2012] [Originally Added On: February 17th, 2012]
- 063 World news rap - Video [Last Updated On: February 21st, 2012] [Originally Added On: February 21st, 2012]
- 064 Stem Cell Finding Could Expand Women's Lifetime Supply of Eggs [Last Updated On: February 27th, 2012] [Originally Added On: February 27th, 2012]
- 065 Eggs may be made throughout adulthood [Last Updated On: February 27th, 2012] [Originally Added On: February 27th, 2012]
- 066 IU doctors land large grant for adult stem cell research [Last Updated On: February 29th, 2012] [Originally Added On: February 29th, 2012]
- 067 Children improve in rare disorder with own stem cells [Last Updated On: February 29th, 2012] [Originally Added On: February 29th, 2012]
- 068 Stem Cell-Seeded Cardiopatch Could Deliver Results for Damaged Hearts [Last Updated On: March 8th, 2012] [Originally Added On: March 8th, 2012]
- 069 Study suggests breakthrough in organ transplants [Last Updated On: March 8th, 2012] [Originally Added On: March 8th, 2012]
- 070 Fly research gives insight into human stem cell development and cancer [Last Updated On: March 9th, 2012] [Originally Added On: March 9th, 2012]
- 071 Fly Research Gives Insight Into Human Stem Cell Development [Last Updated On: March 9th, 2012] [Originally Added On: March 9th, 2012]
- 072 Doctor's license suspended after patient's death [Last Updated On: March 9th, 2012] [Originally Added On: March 9th, 2012]
- 073 The Prostate Cancer Foundation Expands Global Reach, Adds First Two PCF Young Investigators in China [Last Updated On: March 10th, 2012] [Originally Added On: March 10th, 2012]
- 074 Correcting human mitochondrial mutations [Last Updated On: March 12th, 2012] [Originally Added On: March 12th, 2012]
- 075 Orgenesis Inc. Announces Definitive Agreement to Acquire Autologous Insulin Producing Cells (AIPC) Regeneration ... [Last Updated On: March 14th, 2012] [Originally Added On: March 14th, 2012]
- 076 Stem cells hint at potential treatment for Huntington's Disease [Last Updated On: March 15th, 2012] [Originally Added On: March 15th, 2012]
- 077 'Forged' brain cells offers hope for Huntington's disease treatment [Last Updated On: March 16th, 2012] [Originally Added On: March 16th, 2012]
- 078 A Chance to Ease the Pain Of a Rescue Hero of 9/11 [Last Updated On: March 20th, 2012] [Originally Added On: March 20th, 2012]
- 079 Post-Abortion Baby Parts Now a Booming Business [Last Updated On: March 21st, 2012] [Originally Added On: March 21st, 2012]
- 080 Scientists reprogram cancer cells with low doses of epigenetic drugs [Last Updated On: March 23rd, 2012] [Originally Added On: March 23rd, 2012]